This page will be updated as the lab progresses. Please check back during the course of the lab for additional resources. If something is missing or you have questions, please send us an email at missy.villa@beaverton.cc.
Lab Handouts
Caregiving Binder (a physical copy of this binder will be available on Sunday, May 4)
Understanding Alzheimer's and Dementia
Oregon Advance Directive for Health Care (English)
Oregon Advanced Directives
Advance Directive Forms (in multiple languages and available with a user guide)
Faith Community Nurses & Faith Based Organizations Supporting Caregivers
Parish Nurse Resources (Resources for Parish and Faith Community Nurses)
Home Instead Home Care Services (Home Instead provides safe and consistent care for your loved one as they age, delivered at home with both comfort and transparency.)
Faith Community Nurse Network (Faith community nurses bridge faith and health by providing whole-person care in our congregations and communities.)
Faith Community Health Network (The Faith Community Health Network supports a growing group of dedicated Faith Community Nurses bringing healthcare access to vulnerable and diverse populations in a non-traditional setting.)
The Center for Faith and Community Health Transformation (Nurturing the human spirit through health education, spiritual support and linking the needs of the whole person to resources within the congregation, community and health care system.)
Creating Caregiver-Friendly Faith Communities (Designed to help churches, temples, faith centers and other places of worship implement practical strategies to provide encouragement and care to caregivers and their dependents, transforming what can often feel like a heavy burden into one of life’s greatest blessings.)
Family Caregiver Alliance (The mission of Family Caregiver Alliance is to improve the quality of the life for family caregivers and the people who receive their care.)
Caregiver Action Network (Spend time exploring this rich and immensely helpful site. Their Caregiver Help Desk, 855-227-3640 is staffed by experts and offers FREE support for caregivers, Mon-Fri from 8am to 7pm EST.)
Next Step in Care (This is a nuts and bolts website, with lots of practical information - forms, dealing with the medical system. It's provided by the United Hospital Fund, so will not be as rich a resource for patient/caregiver advocacy.)
Center for Medicare Advocacy (This is the site that is on your site. A main resource from Sharon's presentation on week one.)
The Alzheimer's Association for ALL forms of Major Neurocognitive Disorders (Dementia)
Alzheimer's Association Key Resources (FREE online classes)
Alzheimer's Association 24/7 Helpline - 800.272.3900 (Call anytime to receive reliable information, advice and support. Trained and knowledgeable staff are ready to listen and can help you with referrals to local community programs and services; dementia-related education; crisis assistance; and emotional support.)
UCLA Health - Dementia Care Caregiver Education (This is a terrific site that provides clever, creative, caregiver friendly videos for dealing with common challenges in dementia care.)
Guidebooks on Dementia & Caregiving
"Help is Here" (The "Help Is Here" series of books offers you a practical guide to make the experience easier for you and the person you care for. Our books include examples of real-life situations that you may encounter as a caregiver, with practical advice on how to communicate and interact with people with dementia.)
State of Oregon Family Caregiver Handbook (A guide for family and other unpaid caregivers who care for older adults or persons with disabilities.)
What are the rights of patients in ambulatory/outpatient care centers?
I could not easily find the answer to this question. There's a lot written by the Surgery Centers about your rights, but I couldn't find a specific neutral source for you. I'd also say that it could also depend on whether or not the patient was being covered by Medicare. Either way, reach out to Oregon Patient Safety Commission at 503-928-6158.
Is the hospital responsible for transporting a patient who is being discharged to a skilled nursing facility or rehab?
If you are told that you are responsible for the transport, but are not comfortable, ask for the hospital patient advocate or something in writing as to why, in this case, they are not responsible for covering the transport. Visit this link for more information.
Resources for Mental Health Crises and Emergency Rooms:
National Alliance on Mental Illness (NAMI) Oregon Resource Helpline - 503-230-8009
Mental Health Law in Oregon
Oregon Administrative Rule -Discharge Planning for Patients Behavioral Health Crisis Fact Sheet